On March 22, Gaston Sendin and Eva Murauer, directors at DEBRA Research, attended DEBRA France's 40th-anniversary meeting in Paris. The patient organisation marked four decades of supporting individuals and families affected by Epidermolysis Bullosa (EB), honoring its commitment to care, advocacy, and research.

The gathering brought together DEBRA France representatives, individuals living with EB, their families, and medical and research professionals. Eva and Gaston, representing DEBRA Research, seized the opportunity to emphasize our organization’s dedication to advancing EB therapy development. This milestone event also provided an opportunity to engage with the French EB community and highlight the importance of patient feedback in shaping research priorities. Moreover, the anniversary acted as a powerful reminder of the progress made while reinforcing the ongoing need for continued innovation and research in the field.